Skip to main content

Table 1 Overview of themes: barriers to reporting of pregnancy and adverse pregnancy outcomes (APOs)

From: Barriers and enablers to reporting pregnancy and adverse pregnancy outcomes in population-based surveys: EN-INDEPTH study

Major theme Sub-theme Barriers to reporting of pregnancy Barriers to reporting of adverse outcomes
Socio-cultural and spiritual beliefs Stigma Unplanned pregnancy, fear of judgement Blame for women for these APOs; fear of judgement and stigma from the community
Religion Religion discourages pregnancy before marriage Fatalism about APOs or seen as punishment
Witchcraft and spiritual beliefs People with ill intentions will harm the baby; evil spirits attracted by disclosure Miscarriage and stillbirth caused by spiritual harm, or punishment; talking about it may cause a reoccurrence of APO
Variation in recognition of the baby’s value   Baby not considered human; value attached to a baby influences reaction to death
Burial and mourning practices   Often different for APOs, especially miscarriages and stillbirths; secretive burials
Descriptions/names of APOS   Names with negative meanings; same names used to mean different APOs
Trust/privacy Lack of trust, unsure of privacy and confidentiality of their information
Gender & patriarchy Men who do not want their wives to be interviewed; more barriers for interviewer of a particular sex
Woman-specific Age Adolescent girls: secretive, scared and shy
Individual response to pregnancy Woman unsure about pregnancy and considering if to terminate the pregnancy
Psycho-social impact of APOs Negative psychological and emotional impact   APOs cause grief and sadness. Talking about them resurrects bad memories
Survey interview tools and processes Specific to these outcomes Questions on APOs considered irrelevant, purpose and benefits not clear to women
Questions are intrusive on a sensitive topic
General Interviewer skills, strategies and knowledge
Long interview tools with apparently repetitive questions
Physical distance challenges in locating respondents
High workload for interviewers
Inconvenient time of interviews
Multiple call-backs to a household to locate right respondent
  1. Note: Enablers to reporting of pregnancy and adverse pregnancy outcomes were generally the converse of the barriers. Specific enablers mentioned focused on the ‘Survey interview tools and processes’ theme and included enabling factors around the interview process, interviewer skills and strategies and the respondents understanding of and perceived benefits from the interview